When she was about 6 months old ... I found her constantly straining her face ... and her hands. It was a consistent thing that became very worrisome for me as a new mom. As she grew a bit into toddler stages --- it increased and got much much worse. That is when the testing began. We went through many tests trying to figure it out. EEG (?) she had several .... watching for Seizures. Nothing came of that .... as we moved to Spokane and started with a new practice and Pediatrician .... her new doctor wanted her own tests done to make sure nothing was missed. After it all we pretty much gathered that she had a Chronic Motor Tic Disorder ... She had a special name for it ... but that is the jist of it. This has been a changing habit for her.... it has taken different forms over the years .... but now is centralized in her hands and face. She gets embarrassed about it now that she is older ... because people constantly ask her about it ... and she doesn't know how to respond. She says people have told her it is "weird".This week has been a trying one for her. She has had friends at school embarrass her about it ... and her insecurity as a pre teen is just getting bigger. As I sought out friends of mine ... which are many parents to Araleigh's closest friends... I learned something that I already knew .... but had confirmed to me. We have a very special and amazing girl in our home. Yes, there are MINIMAL times when we have a HANGRY and moody pre-teen on our hands. But she is NEVER unkind in heart. I have honestly rarely ever felt anyone more Christlike than her. Of course she isn't perfect ..... but if I could obey the rules .. .... and see things Black or White ... man I would. She NEVER breaks rules .... and it KILLS her when I force her to (like being late .... or turning in Homework on Monday not Friday) .... the SIMPLE things are a HUGE deal to her. I learned through this week that she sometimes gets called "Goodie Goodie" .... and to be honest. . . my heart jumped. It may be a act of negativity to those saying it... but if I can help her truly SEE that her innocent heart ... and pure ways of thinking is one of the most incredible gifts to have... I hope she will see it as a pure compliment and not a put down. I also learned that she also has impact on those around us. I am so fortunate to have incredible friends ... whom I cannot imagine life without anymore. I found that a dear friend had already gone to bat for my girl .... trying to get to the bottom of it before we found out because of how much we are going through right now. Their daughters stuck up for mine .... and spoke up to their parents about someone hurting her feelings. I am so impressed by all of these girls who chose to do this. I learned a big lesson on this. . . and hope to learn something from it. I may not deserve to have such mercy and kindness happen to me sometimes ..... but to actually witness these girls and their parents stand up for my little girl ............. I am humbled. So for those of you who know me ..... know my beautiful daughter and her amazing soul that lives inside her ..... Thank you. Thank you for creating a Backbone for me ..... for being that support when I needed it. For her ... without even know how incredibly special she is ..... to have so many fighting for her .... and for her well being is much more than I could ever express. Someday, she will reflect on these writings ... and my purpose in this is to help her SEE that all the trials she has endured already ..... and will continue to suffer through as life happens..... that she has a HUGE family of support behind her. She has had many tears shed for her and for me on both our behalf. So many dear friends ... incredibly sensitive to her and our ongoing struggles . . . . She is an incredible girl. She is my Light in the Darkness . . . . and someday I pray and hope to have that inner glow that she carries naturally inside of her reflect inside of me. 
Thursday, October 20, 2016
Goodie Goodie
In my Patriarchal Blessing it stated that we would have Strong --Exceptional so Spirits come into our home. One's that were meant for this day. . . . and I know that my oldest Araleigh ... is exceptionally so. Since she was little ... she has always been curious. How does this work ... why? When? How? She has always been so compelled with informational facts. To this day .... she does information writing and reports ... for FUN at school... because she finds it fascinating. She is also incredibly smart. Her brain works COMPLETELY different than mine. I have to ask her about Math ... her friends ask her about Math .... her teacher last year had to consult with her old Professor on what to challenge her with in Math as she was already bored and finished with all the 3rd grade curriculum. I am so proud of her. There are a few things I need to make note of .... that someday she will reflect on.
When she was about 6 months old ... I found her constantly straining her face ... and her hands. It was a consistent thing that became very worrisome for me as a new mom. As she grew a bit into toddler stages --- it increased and got much much worse. That is when the testing began. We went through many tests trying to figure it out. EEG (?) she had several .... watching for Seizures. Nothing came of that .... as we moved to Spokane and started with a new practice and Pediatrician .... her new doctor wanted her own tests done to make sure nothing was missed. After it all we pretty much gathered that she had a Chronic Motor Tic Disorder ... She had a special name for it ... but that is the jist of it. This has been a changing habit for her.... it has taken different forms over the years .... but now is centralized in her hands and face. She gets embarrassed about it now that she is older ... because people constantly ask her about it ... and she doesn't know how to respond. She says people have told her it is "weird".This week has been a trying one for her. She has had friends at school embarrass her about it ... and her insecurity as a pre teen is just getting bigger. As I sought out friends of mine ... which are many parents to Araleigh's closest friends... I learned something that I already knew .... but had confirmed to me. We have a very special and amazing girl in our home. Yes, there are MINIMAL times when we have a HANGRY and moody pre-teen on our hands. But she is NEVER unkind in heart. I have honestly rarely ever felt anyone more Christlike than her. Of course she isn't perfect ..... but if I could obey the rules .. .... and see things Black or White ... man I would. She NEVER breaks rules .... and it KILLS her when I force her to (like being late .... or turning in Homework on Monday not Friday) .... the SIMPLE things are a HUGE deal to her. I learned through this week that she sometimes gets called "Goodie Goodie" .... and to be honest. . . my heart jumped. It may be a act of negativity to those saying it... but if I can help her truly SEE that her innocent heart ... and pure ways of thinking is one of the most incredible gifts to have... I hope she will see it as a pure compliment and not a put down. I also learned that she also has impact on those around us. I am so fortunate to have incredible friends ... whom I cannot imagine life without anymore. I found that a dear friend had already gone to bat for my girl .... trying to get to the bottom of it before we found out because of how much we are going through right now. Their daughters stuck up for mine .... and spoke up to their parents about someone hurting her feelings. I am so impressed by all of these girls who chose to do this. I learned a big lesson on this. . . and hope to learn something from it. I may not deserve to have such mercy and kindness happen to me sometimes ..... but to actually witness these girls and their parents stand up for my little girl ............. I am humbled. So for those of you who know me ..... know my beautiful daughter and her amazing soul that lives inside her ..... Thank you. Thank you for creating a Backbone for me ..... for being that support when I needed it. For her ... without even know how incredibly special she is ..... to have so many fighting for her .... and for her well being is much more than I could ever express. Someday, she will reflect on these writings ... and my purpose in this is to help her SEE that all the trials she has endured already ..... and will continue to suffer through as life happens..... that she has a HUGE family of support behind her. She has had many tears shed for her and for me on both our behalf. So many dear friends ... incredibly sensitive to her and our ongoing struggles . . . . She is an incredible girl. She is my Light in the Darkness . . . . and someday I pray and hope to have that inner glow that she carries naturally inside of her reflect inside of me.
When she was about 6 months old ... I found her constantly straining her face ... and her hands. It was a consistent thing that became very worrisome for me as a new mom. As she grew a bit into toddler stages --- it increased and got much much worse. That is when the testing began. We went through many tests trying to figure it out. EEG (?) she had several .... watching for Seizures. Nothing came of that .... as we moved to Spokane and started with a new practice and Pediatrician .... her new doctor wanted her own tests done to make sure nothing was missed. After it all we pretty much gathered that she had a Chronic Motor Tic Disorder ... She had a special name for it ... but that is the jist of it. This has been a changing habit for her.... it has taken different forms over the years .... but now is centralized in her hands and face. She gets embarrassed about it now that she is older ... because people constantly ask her about it ... and she doesn't know how to respond. She says people have told her it is "weird".This week has been a trying one for her. She has had friends at school embarrass her about it ... and her insecurity as a pre teen is just getting bigger. As I sought out friends of mine ... which are many parents to Araleigh's closest friends... I learned something that I already knew .... but had confirmed to me. We have a very special and amazing girl in our home. Yes, there are MINIMAL times when we have a HANGRY and moody pre-teen on our hands. But she is NEVER unkind in heart. I have honestly rarely ever felt anyone more Christlike than her. Of course she isn't perfect ..... but if I could obey the rules .. .... and see things Black or White ... man I would. She NEVER breaks rules .... and it KILLS her when I force her to (like being late .... or turning in Homework on Monday not Friday) .... the SIMPLE things are a HUGE deal to her. I learned through this week that she sometimes gets called "Goodie Goodie" .... and to be honest. . . my heart jumped. It may be a act of negativity to those saying it... but if I can help her truly SEE that her innocent heart ... and pure ways of thinking is one of the most incredible gifts to have... I hope she will see it as a pure compliment and not a put down. I also learned that she also has impact on those around us. I am so fortunate to have incredible friends ... whom I cannot imagine life without anymore. I found that a dear friend had already gone to bat for my girl .... trying to get to the bottom of it before we found out because of how much we are going through right now. Their daughters stuck up for mine .... and spoke up to their parents about someone hurting her feelings. I am so impressed by all of these girls who chose to do this. I learned a big lesson on this. . . and hope to learn something from it. I may not deserve to have such mercy and kindness happen to me sometimes ..... but to actually witness these girls and their parents stand up for my little girl ............. I am humbled. So for those of you who know me ..... know my beautiful daughter and her amazing soul that lives inside her ..... Thank you. Thank you for creating a Backbone for me ..... for being that support when I needed it. For her ... without even know how incredibly special she is ..... to have so many fighting for her .... and for her well being is much more than I could ever express. Someday, she will reflect on these writings ... and my purpose in this is to help her SEE that all the trials she has endured already ..... and will continue to suffer through as life happens..... that she has a HUGE family of support behind her. She has had many tears shed for her and for me on both our behalf. So many dear friends ... incredibly sensitive to her and our ongoing struggles . . . . She is an incredible girl. She is my Light in the Darkness . . . . and someday I pray and hope to have that inner glow that she carries naturally inside of her reflect inside of me. 
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